About EliMo Foundation
Our foundation was established in 2018 with the aim of helping more children in need, giving them and their families hope for a better life.
In the last couple of years we developed a great network of trusted followers and donators. As many others we also faced lot of obstacles, but never gave up.
We were working on different methods of fundraising. Besides the simple collection of funds through social media we established trusted channels for individuals through online charity auctions and groups. We are also proud to be the first in Hungary who developed a charity webshop where we built up a business partnership network of bigger brands who are offering a smaller percentage for charity of all the purchases made through our website.
“At first, my plans included helping sick children living in Hungary by raising the necessary funds for their treatment with the safe background of the foundation. However, an increasing number of inquiries towards the foundation from parents of young children, especially those with SMA, have changed my plans and I have decided to expand the activities of the foundation. So today I am not only focusing on helping children living in Hungary, but all over the world. I can’t and won’t say no, I’m not able to do less when the life of a sick child is at stake.” – Monika Murinai, leader of the Foundation.
SMA ( Spinal muscular atrophy) is a rare genetic disorder where the motor neurons can’t function properly, all the muscle mess is getting destroyed gradually and leads to muscle weakness, that worsens with age. Children with SMA type 1 may also have swallowing problems which makes feeding difficult, leading to further physical underdevelopment of the child. Due to the weakness of respiratory muscles, preventing the lungs from fully expanding, most of these children would not survive past early childhood due to respiratory failure.
A lot of SMA children is living in the world and their needed treatment and therapy is one of the most expensive ones, costing 2.132.000 EUR. But for them Zolgensma represents the only hope for a life. We also understand that this is a huge burden for the families, and most of them don’t have the resources and the channels to collect this amount of money on their own.
We are providing help in fundraising and with connections to the best hospitals who provide the therapy. Behind our foundation there is a professional team of conscientious and persistent doctors of the Bethesda Children’s Hospital in Budapest, specialising in SMA. They have already successfully treated 12 children with Zolgensma gene therapy.
